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I have a lot of friends and family that ask very often about my little Dino Man’s eyes, thank you so much for always thinking of him guys! I’ll try to keep updating you all here at least once or twice a year.
They are stable. And this is good.
He is still seeing the three specialist for the corneal, retinal and general pediatric eye problems, though we did stop patching several months ago, as there wasn’t much more we could do to strengthen that left eye. (he had so much corneal scarring that he just couldn’t see through it and stopped using it at the very beginning of the whole process.) As you can see he’s still in bifocals for reading, but the glasses still don’t really do anything to help his vision. They are there for protection for the most part, and truthfully, he loves them. He was made to wear them. (I mean look at him!)
He will hopefully be going off autoimmune medication this coming fall, and from there we will see what happens. We are all unsure of what will happen after that point, since the medication was experimental for treating the corneal issues. I will definitely let you know how it goes though!